Family fights to save child with rare genetic disorder FOP

Family fights to save child with rare genetic disorder FOP


Ali McKean was born with a very rare genetic disorder called Fibrodysplasia Ossificans Progressiva (FOP). It took a large team of doctors more than 5 years to diagnose Ali's disorder, which causes her muscles to turn into bone, slowly turning the little girl into a statue. Read more: www.northwestohio.com You can learn more about Ali's fight and how to help at www.alis-army.org
@catharine69 ありがとー!いやほんとに!(`・ω・´)青髪似合うね!青が似合う人初めて見た(笑)こちらこそよろしくです!


@s1maru9 仙台のが南なのに、仙台が25度くらいのときに秋田が30度越えとかしてたらしいっすよ(笑)注意しなきゃですな!


“@Mr_856: @KRkeepitreal I need a FOP card wen yu get them! Thanks in advance!” Lol i got you


só sei que vou ver o lindo do @fop_oliveira


@catharine69 よかったー。゚(゚´Д`゚)゚。でも秋田今猛暑だから複雑(笑)キャサリンちゃん予想以上にかわいくてびっくりした!


@jaydubz2793 i broke my flip fop sunday nite lol goin down the stairs


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